My name is Dylan Samantha Souter and I am 13 years old. I have Rett Syndrome.

This is a rare and very severe neurological disease which almost exclusively affects females. I cannot walk, talk or use my hands.

I will face many more problems in the future.

But a cure is possible - and within reach. Rett Syndrome has been reversed in the lab. This year, finally, the first gene therapy trial on women received approval. It was made possible by donations from the public and fundraising initiatives like ours.


With time running out for Dylan and the hundreds of thousands of girls and women suffering with Rett Syndrome, funding is urgently needed now more than ever.

Please help give Dylan a future.


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