My name is Dylan Samantha Souter and I am 9 years old. I have Rett Syndrome.

This is a rare and very severe neurological disease which almost exclusively affects girls. I cannot walk, talk or use my hands.

I will face many more problems in the future.

But a cure is possible. Rett Syndrome has been reversed in the lab. The first gene therapy trial on humans is expected within a year.

Funding is urgently needed, now more than ever.

Please help give Dylan a future.


2019 Event: Tickets on sale NOW - click here